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Last update : 09/02/2015
The LeukoDataBase (or LeukoDB) was developed during LeukoTreat, aiming to be the reference European database on leukodystrophies. Now managed jointly by ELA and Soluscience, this information system dedicated to data collection of leukodystrophy patients throughout Europe is centralising for the first time at European scale three categories of information, for each patient affected with leukodystrophy:
The LeukoDatabase currently represents the largest database on leukodystrophy patients with:
This will allow for a better understanding of leukodystrophies, especially through the establishment of much quicker and easier correlations between patients' data.
An information leaflet to be downloaded (in English or in French) presents the LeukoDatabase to patients and families. It explains how patients and their families’ rights are protected when participating to the LeukoDatabase.