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Last update : 09/02/2015
Founded in 1992, the European Leukodystrophies Association (ELA) is an association of motivated and informed parents and patients who share responsibilities within ELA and have united their efforts in order to fight leukodystrophies. Its objectives are clear:
ELA is thus a bridge between all forms of leukodystrophy and a family solidarity network.
Since the year 2000, ELA France has helped the creation of ELA branches in Switzerland, Belgium, Luxembourg, Spain, and more recently, Italy.
The aim is to raise public awareness for leukodystrophies and pool resources in order to develop medical research across Europe.
- 5.9 million euros for families support;
- 30.3 million euros for medical research, representing 387 medical research programmes.
More information about the ELA association available on their website.